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تجربۀ زیستۀ مادران دارای فرزند با ناتوانی‌های ذهنی- حرکتی (مقدمه‌ای بر چالش‌های روان‌شناختی مواد 53 و 56 قانون حمایت از خانواده و جوانی جمعیت) | ||
| زن در توسعه و سیاست | ||
| دوره 22، شماره 1، فروردین 1403، صفحه 89-113 اصل مقاله (629.55 K) | ||
| نوع مقاله: مقاله پژوهشی | ||
| شناسه دیجیتال (DOI): 10.22059/jwdp.2023.359021.1008339 | ||
| نویسندگان | ||
| پروانه علایی1؛ مریم حکم آبادی قشونی* 2 | ||
| 1استادیار روان‌شناسی تربیتی، گروه مطالعات خانواده، دانشکدۀ علوم تربیتی و روان‌شناسی، دانشگاه شهید مدنی آذربایجان، تبریز، ایران. | ||
| 2دانش‌آموختۀ کارشناسی ارشد مطالعات زنان، دانشگاه شهید مدنی آذربایجان، تبریز، ایران. | ||
| چکیده | ||
| در سال‌های اخیر به دلیل کاهش نرخ فرزندآوری، در نظام سیاست‌گذاری تلاش‌هایی شده است که از آن‌جمله می‌توان به طرح جوانی جمعیت و حمایت از خانواده، مصوب اسفند 1399 اشاره کرد. در موادی از این طرح به تحدید غربالگری اشاره‌شده که هدف از انجام‌دادن این پژوهش شناسایی ملاحظات فردی- اجتماعی حذف غربالگری مادران باردار پیش از تولد فرزند است. روش پژوهش کیفی و رویکرد آن پدیدارشناسی است. پاسخگویان به روش نمونه‌گیری هدفمند انتخاب شده‌اند و داده‌ها با مصاحبه‌های نیمه‌ساختاریافته با مادرانی که فرزند معلول و کم‌توان دارند و برای کلاس‌های گفتاردرمانی و کاردرمانی به مرکز توان‌بخشی مراجعه کرده‌اند، جمع‌آوری‌شده است. داده‌های حاصل از مصاحبه‌ها به روش تحلیل هفت‌مرحله‌ای کلایزی تحلیل‌شده‌اند. طبق پژوهش انجام‌یافته، داده‌ها در دو گروه فردی و اجتماعی دسته‌بندی شدند. مسائل فردی شامل مشکلات آموزشی، کمبود اطلاعات و ناآگاهی، احساسات و عواطف و مسائل ارتباطی است. بخش اجتماعی شامل مسائل برچسب اجتماعی و حمایت‌های اجتماعی است که هرکدام شامل زیرمجموعه‌هایی است. می‌توان نتیجه گرفت که حضور فرزند بیمار در خانواده تأثیرات زیادی در همۀ ابعاد زندگی اعضای خانواده و به‌خصوص مادر دارد. امید است نتایج این تحقیق بتواند در راستای کاهش نگرانی‌های عمومی مؤثر واقع شود؛ به‌گونه‌ای که سیاست‌های مربوط به افزایش جمعیت موفق‌تر عمل کند و چالش‌های روانی– اجتماعی غربالگری مادران باردار پیش از تولد فرزند را بهتر پاسخ دهد تا درنهایت تلاش‌های انجام‌یافته در افزایش جمعیت سالم نمود یابد و قانون‌گذاری صحیح در راستای منافع ملت و دولت انجام گیرد. | ||
| کلیدواژه‌ها | ||
| بارداری؛ سقط‌جنین؛ غربالگری پیش از تولد؛ ناتوانی ذهنی و حرکتی | ||
| عنوان مقاله [English] | ||
| The Lived Experience of Mothers with Children Who Have Mental-Motor Disabilities (An Introduction to the Psychological Challenges of Articles 53 and 56 of Family Protection Law and Young Population) | ||
| نویسندگان [English] | ||
| Parvaneh Alaie1؛ Maryam Hokmabadi Goshuni2 | ||
| 1Assistant Professor of Educational Psychology, Family Studies Department, Faculty of Education and Psychology, Azarbaijan Shahid Madani University, Tabriz, Iran. | ||
| 2Graduated with a master's degree in women's studies, Azarbaijan Shahid Madani University, Tabriz, Iran. | ||
| چکیده [English] | ||
| In recent years, due to the decrease in the rate of childbearing, efforts have been made in the policy system, among which we can mention the plan for the youth of the population and support for the family approved in 2019. The limitation of screening is mentioned in this project. The purpose of this research is to identify the individual-social considerations of eliminating the screening of pregnant mothers before the birth of a child. The method is qualitative and its approach is phenomenology. The data was collected through semi-structured interviews with mothers who have a disabled child and who visited the rehabilitation center for speech therapy and occupational therapy classes. The data were classified into two groups, individual and social. Individual issues include educational problems, lack of information and ignorance, feelings and emotions, communication issues. The social part includes social labeling and social support. As a result the presence of a sick child in the family has many effects on all aspects of the life of the family members, especially the mother. It is hoped that the results can be effective in reducing public concerns in such a way that policies related to population increase work more successfully and The psycho-social challenges of the screening of pregnant mothers before the birth of the child should be better answered. In the end, the efforts made will be reflected in the increase of healthy population, Until the correct legislation is realized in line with the interests of the nation and the government. | ||
| کلیدواژه‌ها [English] | ||
| Abortion, Mental and motor disability, Pregnancy, Prenatal screening | ||
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| مراجع | ||
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