پیوندهای مفید
اخبار و اعلانات
آمار
| تعداد نشریات | 161 |
| تعداد شماره‌ها | 6,573 |
| تعداد مقالات | 71,032 |
| تعداد مشاهده مقاله | 125,502,503 |
| تعداد دریافت فایل اصل مقاله | 98,766,616 |
تجربۀ زیستۀ مادران دارای فرزند با ناتوانی‌های ذهنی- حرکتی (مقدمه‌ای بر چالش‌های روان‌شناختی مواد 53 و 56 قانون حمایت از خانواده و جوانی جمعیت) | ||
| زن در توسعه و سیاست | ||
| دوره 22، شماره 1، فروردین 1403، صفحه 89-113 اصل مقاله (629.55 K) | ||
| نوع مقاله: پژوهشی | ||
| شناسه دیجیتال (DOI): 10.22059/jwdp.2023.359021.1008339 | ||
| نویسندگان | ||
| پروانه علایی1؛ مریم حکم آبادی قشونی* 2 | ||
| 1استادیار روان‌شناسی تربیتی، گروه مطالعات خانواده، دانشکدۀ علوم تربیتی و روان‌شناسی، دانشگاه شهید مدنی آذربایجان، تبریز، ایران. | ||
| 2دانش‌آموختۀ کارشناسی ارشد مطالعات زنان، دانشگاه شهید مدنی آذربایجان، تبریز، ایران. | ||
| چکیده | ||
| در سال‌های اخیر به دلیل کاهش نرخ فرزندآوری، در نظام سیاست‌گذاری تلاش‌هایی شده است که از آن‌جمله می‌توان به طرح جوانی جمعیت و حمایت از خانواده، مصوب اسفند 1399 اشاره کرد. در موادی از این طرح به تحدید غربالگری اشاره‌شده که هدف از انجام‌دادن این پژوهش شناسایی ملاحظات فردی- اجتماعی حذف غربالگری مادران باردار پیش از تولد فرزند است. روش پژوهش کیفی و رویکرد آن پدیدارشناسی است. پاسخگویان به روش نمونه‌گیری هدفمند انتخاب شده‌اند و داده‌ها با مصاحبه‌های نیمه‌ساختاریافته با مادرانی که فرزند معلول و کم‌توان دارند و برای کلاس‌های گفتاردرمانی و کاردرمانی به مرکز توان‌بخشی مراجعه کرده‌اند، جمع‌آوری‌شده است. داده‌های حاصل از مصاحبه‌ها به روش تحلیل هفت‌مرحله‌ای کلایزی تحلیل‌شده‌اند. طبق پژوهش انجام‌یافته، داده‌ها در دو گروه فردی و اجتماعی دسته‌بندی شدند. مسائل فردی شامل مشکلات آموزشی، کمبود اطلاعات و ناآگاهی، احساسات و عواطف و مسائل ارتباطی است. بخش اجتماعی شامل مسائل برچسب اجتماعی و حمایت‌های اجتماعی است که هرکدام شامل زیرمجموعه‌هایی است. می‌توان نتیجه گرفت که حضور فرزند بیمار در خانواده تأثیرات زیادی در همۀ ابعاد زندگی اعضای خانواده و به‌خصوص مادر دارد. امید است نتایج این تحقیق بتواند در راستای کاهش نگرانی‌های عمومی مؤثر واقع شود؛ به‌گونه‌ای که سیاست‌های مربوط به افزایش جمعیت موفق‌تر عمل کند و چالش‌های روانی– اجتماعی غربالگری مادران باردار پیش از تولد فرزند را بهتر پاسخ دهد تا درنهایت تلاش‌های انجام‌یافته در افزایش جمعیت سالم نمود یابد و قانون‌گذاری صحیح در راستای منافع ملت و دولت انجام گیرد. | ||
| کلیدواژه‌ها | ||
| بارداری؛ سقط‌جنین؛ غربالگری پیش از تولد؛ ناتوانی ذهنی و حرکتی | ||
| عنوان مقاله [English] | ||
| The Lived Experience of Mothers with Children Who Have Mental-Motor Disabilities (An Introduction to the Psychological Challenges of Articles 53 and 56 of Family Protection Law and Young Population) | ||
| نویسندگان [English] | ||
| Parvaneh Alaie1؛ Maryam Hokmabadi Goshuni2 | ||
| 1Assistant Professor of Educational Psychology, Family Studies Department, Faculty of Education and Psychology, Azarbaijan Shahid Madani University, Tabriz, Iran. | ||
| 2Graduated with a master's degree in women's studies, Azarbaijan Shahid Madani University, Tabriz, Iran. | ||
| چکیده [English] | ||
| In recent years, due to the decrease in the rate of childbearing, efforts have been made in the policy system, among which we can mention the plan for the youth of the population and support for the family approved in 2019. The limitation of screening is mentioned in this project. The purpose of this research is to identify the individual-social considerations of eliminating the screening of pregnant mothers before the birth of a child. The method is qualitative and its approach is phenomenology. The data was collected through semi-structured interviews with mothers who have a disabled child and who visited the rehabilitation center for speech therapy and occupational therapy classes. The data were classified into two groups, individual and social. Individual issues include educational problems, lack of information and ignorance, feelings and emotions, communication issues. The social part includes social labeling and social support. As a result the presence of a sick child in the family has many effects on all aspects of the life of the family members, especially the mother. It is hoped that the results can be effective in reducing public concerns in such a way that policies related to population increase work more successfully and The psycho-social challenges of the screening of pregnant mothers before the birth of the child should be better answered. In the end, the efforts made will be reflected in the increase of healthy population, Until the correct legislation is realized in line with the interests of the nation and the government. | ||
| کلیدواژه‌ها [English] | ||
| Abortion, Mental and motor disability, Pregnancy, Prenatal screening | ||
|
سایر فایل های مرتبط با مقاله
|
||
| مراجع | ||
|
Ahmadi, Kh., Khodadadi, Gh., Anisi, J., & Abdolmohammadi, E. (2011). Problems of families with disabled children. Journal of Military Medicine, 13(1), 49-52. (In Persian) Ahmadifard, S., Nikkhoo, N., & Mahdieh, S. (2021). Investigating and analyzing the reasons for abortion and the related rulings based on the opinions of Ayatollah Makarem. Imami Fiqh Studies Quarterly, 9(17), 49-75. (In Persian) Akrami, S. M., Parvin, K., & Razmjoo, M. (2021). Legal review of fetal health screening and medical abortion in the population rejuvenation plan and family support. Medical Law Journal, 15(56), 505-516. (In Persian) Alaee, N., Shahboulaghi, F. M., Khankeh, H., & Mohammad Khan Kermanshahi, S. (2015). Psychosocial Challenges for Parents of Children with Cerebral Palsy: A Qualitative Study. Journal of Child and Family Studies, 24(7), 2147-54. https://doi.org/10.1007/s10826-014-0016-3 Dashtikhani, V. (2018). Validation of fetal health screening tests for chromosomal disorders and its comparison with invasive confirmatory tests. Master's thesis. University of Science and Art, Yazd, Iran. (In Persian) El-Hattab, A. W., Almannai, M., & Sutton, V. R. (2018). Newborn Screening: History, Current Status, and Future Directions. Pediatric clinics of North America, 65(2), 389–405. https://doi.org/10.1016/j.pcl.2017.11.013 Gharibi, H., & Gholizadeh, Z. (2011). Phenomenology of mothers’ experiences in living with children with AD/HD disorder. Procedia-Social and Behavioral Sciences, 30, 1630-1634. https://doi.org/10.1016/j.sbspro.2011.10.316 Hivadi, B., Mirzayi, S. M., Bahrami, H., & Salehi, M. (2007). Comparison of irrational believes between mothers of severe or profound mentally handicapped children with healthy children Mothers. Jrehab; 8(3), 75-80. (In Persian) Kermanshahi, S., Vanaki, Z., Ahmadi, F., Kazemnejad, A., & Azadfalah, P. (2008). Children with learning disabilities: A phenomenological study of the lived experiences of Iranian mothers, International Journal of Qualitative Studies on Health and Well-Being, 3(1), 18-26. https://doi.org/10.1080/17482620701757284 Khodabakhshi-Koolaee, A., Aghakhani Kooshki, M., &, Kalhor, N. (2019). Analysis the experiences of mothers in caring of a disabled child: A phenomenological Study. JPEN, 6(2), 68-75. (In Persian) Kimiaee, A., Mehrabi, H., & Mirzaee, Z. (2010). A comparative study of the mental health status of fathers and mothers of children with educable mental disabilities in Mashhad. Studies in Education and Psychology, 11(1), 261-278. https://doi.org/10.22067/FE.V11I1.1827 (In Persian) Kordi, M., Riyazi, S., Lotfalizadeh, M., & Shakeri, M. T. (2017). Relationship of Informed Choice about Fetal Anomaly Screening with Worry and Anxiety in Pregnant Women. Journal of Midwifery and Reproductive Health, 5(2), 867-872. https://doi.org/10.22038/jmrh.2017.8153 (In Persian) Lebni, J., Ziapour, A., Khosravi, B., & Rahimi Khalifeh Kandi, Z. (2021). Lived experience of mothers of children with disabilities: a qualitative study of Iran. Journal of Public Health, 29, 1173–1179. https://doi.org/10.1007/s10389-020-01215-0 Mahdavi, S. (2015). Guidelines for screening and diagnosing fetal abnormalities. The 8th International & 13th National Congres on Quality Improvement in Clinical Laboratories. Tehran, Iran. (In Persian) Matin, H., Ahmadi, S., & Jalali, M. (2019). Phenomenology of the experiences of mothers of children with learning disabilities. Journal of Family Psychology, 5(2), 53-64. (In Persian) Mobarak, R., Khan, N. Z., Munir, S., Zaman, S. S., & McConachie, H. (2000). Predictors of stress in mothers of children with cerebral palsy in Bangladesh. Journal of Pediatric Psychology, 25(6), 427–433. https://doi.org/10.1093/jpepsy/25.6.427 Mokhtari, M., & Abootorabi, F. (2019). Lived experiences of mothers of children with cerebral palsy in Iran: A phenomenological study. Child & Youth Services, 40(3), 224-244. https://doi.org/10.1080/0145935X.2019.1594757 Naghdi, N., Ghasemzadeh, S., & Ghobari Bonab, B. (2019). Phenomenology of Lived Experience of Mothers of Children with Down Syndrome DS. Journal of Applied Psychological Research, 10(2), 105-118. https://doi.org/10.22059/japr.2019.72654 (In Persian) Niazi, M., Shafai Moghadam, E., & Khodadadi, N. (2020). Investigating the quality of life of the disabled family based on the disability of the family member. Journal of Afagh, 3(34), 1-20. (In Persian) Parliament (2021). Family and Youth Protection Law. Islamic Council Research Center. https://rc.majlis.ir/fa/law/show/1678266 Prudente, C., Barbosa, M., & Porto, C. (2010). Relation between quality of life of mothers of children with cerebral palsy and the children’s motor functioning, after ten months of rehabilitation. Revista Latino-Americana de Enfermagem, 18(2), 149–155. https://doi.org/10.1590/s0104-11692010000200002 Rabani, Z. (2020). Comparison of Coping Styles, Distress Tolerance and Religious Adherence in Mothers of Children with Physical-Motor Disabled and Normal. International Journal of Research in Nursing, 6(4), 10-18. http://dx.doi.org/10.29252/ijrn-06042 (In Persian) Sadeghitabar, A. (2015). The Importance and Necessity of Screening for Fetal Abnormalities: Achieving the Goal of “Healthy Society Based on Healthy People”. The 8th International & 13th National Congres on Quality Improvement in Clinical Laboratories. Tehran, Iran. (In Persian) Sa'i Ersi, I. (2008). The youth of the population in Iran. Behavioral Sciences, 1(1), 115–130. (In Persian) Shirzad, A. (2021). Basics of legal protection in marriage contract and couple relations. Master's thesis. Imam Sadegh University, Tehran, Iran. (In Persian) Temming, L., & Macones, G. (2016). What is prenatal screening and why to do it?. Seminars in Perinatology, 40(1), 3–11. https://doi.org/10.1053/j.semperi.2015.11.002 Verma, I. C., & Puri, R. D. (2015). Global burden of genetic disease and the role of genetic screening. Seminars in Fetal & Neonatal Medicine, 20(5), 354–363. https://doi.org/10.1016/j.siny.2015.07.002 Wu, J., Zhang, J., & Hong, Y. (2017). Quality of life of primary caregivers of children with cerebral palsy: a comparison between mother and grandmother caregivers in Anhui province of China. Child: Care, Health and Development, 43(5), 718–724. https://doi.org/10.1111/cch.12464 Yari, E. (2021). Comparative study of children's rights in Islamic jurisprudence, Iranian and British law. Master's thesis. Isfahan University, Isfahan, Iran. (In Persian) Zaeri, S., Bahreini, M., Mirzaei, K., Ravanipour, M., & Zarei, S. (2017). Comparison of power hierarchy, cohesion and structure in families with and without a disabled child from the perspective of their mothers. Iranian South Medical Journal, 20, 180-192. http://dx.doi.org/10.29252/ismj.20.2.180 (In Persian) | ||
|
آمار تعداد مشاهده مقاله: 477 تعداد دریافت فایل اصل مقاله: 344 |
||
سامانه مدیریت نشریات علمی. قدرت گرفته از سیناوب